Last reviewed June 2014
- There maybe many things to ask
- Your rights
- Some questions you might want to ask when you're told you have cancer
- Questions about tests
- Talking about treatment decisions
- Planning for treatment
- Support information
- If advanced cancer is diagnosed
- Asking questions is important
- Information reviewed by
When you visit your doctor you may have many questions. Often these are forgotten in the doctor's office, only to be remembered later.
To help you get the information you want it may help to:
- ask for a longer appointment if you have many questions to ask
- ask a friend or relative to go with you
- write your questions down and take the list with you
- if you have difficulty speaking or understanding English ask for an interpreter or contact the Translating and Interpreting Service 13 14 50.
When cancer is diagnosed you enter into a partnership with your doctor/s and other health professionals in the decisions related to your health. As a patient you have the right to:
- ask questions about your treatment
- be informed about the specific details of your care (including costs)
- be given details about all treatment options in order to make an informed choice
- seek a second medical opinion and/or information from other sources about your diagnosis and treatment.
Each person with cancer is different therefore the health professionals involved in your care are the best people to give you the information specific to you.
- What type of cancer do I have?
- Where is the cancer located?
- Is it slow or fast growing?
- Do you think the cancer has spread from where it started?
- What stage is my cancer? What does that mean for me?
- Is it possible to cure my cancer? If not can it be controlled?
- What are my chances of surviving this cancer?
- What will this test involve? What will this tell you?
- Are there any benefits or risks to me in having this test?
- Will the results of this test make any difference to the decision on what type of treatment I have?
- What treatment/s are available for my type of cancer?
- Do I have a choice of treatments?
- Are there any clinical trials suitable for me?
- What is the aim of this treatment? Is it to cure my cancer, prevent it coming back, prevent it spreading or to relieve symptoms?
- What treatment would you recommend for me?
- Is it necessary to have treatment right now? When do you need my decision?
- How does the treatment work?
- How is the treatment given?
- How will we know if the treatment is working?
- What difference will this treatment make to my quality of life; will I feel unwell? Can I work, drive, have sex, etc?
- What are the possible side effects of treatment? Will I lose my hair?
- Can these side effects be prevented or controlled? Are the effects temporary or permanent?
- Will this treatment affect my ability to have children? Should I see a fertility specialist before I start treatment?
- What if I choose not to have treatment?
- Will there be any out of pocket expenses? Will there be any extra expenses not covered by Medicare or my private health fund?
- How do I apply for benefits or access my insurance if I cannot work? Who can I talk to about this?
- Do you specialise in treating my type of cancer?
- Has the treatment been used for a long time or is it new?
- I'm thinking of getting a second opinion before I make my decision. Is there someone you would recommend?
- Will a multidisciplinary team be involved in my care? How will you all communicate with each other and me?
- Who will be in charge of my care?
- Who do I contact if I have questions or if a problem arises?
- Can I work while I have treatment?
- Is there anything I can do that will help me cope with treatment?
- Are there things I shouldn't do while having treatment?
- Should I exercise? How much? What type would you recommend?
- Do I need to follow a special diet?
NB It is important to let the health care professionals know if you are taking any alternative or complementary therapies when undergoing treatment. Some therapies can interfere with treatment.
- Where can I get more information about my cancer and its treatment e.g. books, videos, websites etc?
- Are there any complementary therapies that you believe may be helpful or are there some that might be harmful?
- Is there someone I can talk to who has been through this treatment?
- Are there services/support groups that are able to assist my family and myself cope with this diagnosis and treatment?
- What is my long-term follow up plan?
- What can I expect to happen?
- What treatments might be available?
- Who will be responsible for my on going care?
- How can my family and/or friends be supported if they care for me at home?
- How do I access palliative/supportive care?
Make a list of any other questions you may think of that are not listed above.
Information reviewed by: Reviewed by Cancer Council 13 11 20 cancer nurses, RAH Oncology nurses, consumers and Western Hospital Oncology nurses.